National Neonatal Palliative Care Programme
Resource list
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MENU
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2025 Conference follow up |
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Frameworks and Guidelines
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| Support for the healthcare team |
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| Journals, Articles & Reports |
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***New*** - NCMD report - 'Infants, children, and young people with life-limiting conditions. Learning from child death reviews on palliative and end of life care provision.'
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These training sessions are run by the National Neonatal Palliative Care Programme, and occur once a month, inviting key speakers and covering a variety of topics in Neonatal Palliative Care. Monthly Monday sessions encourage discussion around new and relevant topics in Neonatal Palliative Care. Enhanced sessions expand on topics covered in our introductory training sessions, which are currently running monthly across several Neonatal Networks, soon to be expanding across the rest of the UK.
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| Monthly Monday's training sessions - Register here
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Monday's - 2pm-4pm
16/06/25 - 'The revised Perinatal Post Mortem Consent form' with Janet Scott, Head of research & prevention, SANDS 21/07/25 - '22 Week Counselling video toolkit' with Dr Janet Berrington, Consultant in Neonatal Medicine 20/10/2025 - 'Use of cooling technologies in perinatal after death care’ with Dr Christine Mott, Paediatric Palliative Care Clinical Lead, West midlands. 24/11/25 - 'The role of the GP in Neonatal Palliative Care' with Dr Bryony Kendall, Named GP for Safeguarding, Cheshire & Merseyside. |
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| Enhanced training sessions - Register here
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Fridays from 10am - 12pm
13/06/25 'Bereavement Care following the death of a twin, triplet or more with FOOTPRINTS Babyloss' 04/07/25 - 'Developments in Neonatal Organ Donation' With Sarah Plant, National Lead Nurse for OD, NHSBT' 12/09/25 - 'The role of the Medical Examiner and the Coroner' with Dr Lydia Bowden, Complex and Palliative care lead, Consultant Neonatologist, Medical Examiner. 10/10/25 - 'The role of the midwife within a children's hospice and Neonatal Palliative Care with Sara Balmforth, Jennifer Burnham, Maria Williamson & Michaela Griffiths’ |
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Course details are all available on the front page of the above link. Anyone interested can read through the topics and learning outcomes the course will cover. Signing up for a FutureLearn account is free. Registering your interest means you will get a notification when the course is live. Anyone can sign up, and NHS-affiliated learners can get a free certificate. The details of how to obtain the free certificate will be available closer to the course launch.
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| Neonatal Organ donation & Perinatal Post mortem |
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| Video's |
Nick Embelton - Managing uncertainty |
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Holly & Bhodi's Story (Chester Milk bank, MMGI): TW: child death & loss |
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Bliss podcast episode: In conversation with....
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TFSL Webinar - Make every child count
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| | Text Palliative Care PSA -We’re the fire department, not the fire. |
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Premature birth at 22 weeks pregnancy - Northern Neonatal Network
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Katie's story about her premature baby - Northern neonatal Network
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Books |
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BLISS in conversation with episode - for healthcare professionals (spotify link)
